Diary of a Man with MS
Started in June 2016. Diary of a man with MS is a sporadic report of my life with MS. There are so many ups and downs, twists and turns. Sometimes I think it is worth telling other people about them.
Sometimes I want to keep the story to myself. None the less this whole website is a story of my life especially the tab ‘Living with MS’.
Diary of a man with MS
MS is another piece of baggage that can make the emotional roller-cosaster ride of life even more exciting or should I say daunting as well as frustrating.
An after thought
I have divided the diary section up into years that way it is easier to see what happens and when. I think this makes it more logical.
Unless I am careful this website is going to get too large and unwieldy. Maybe it is there already. Who knows?
Feeling Frustrated, Lost my Temper
MS is a personal disease, different for everyone. No matter how much you try to explain only an MSer can truly appreciate it. There are subtle changes to the mental state of mind. Claustrophobia, clumsiness, feeling frustrated and even stupidity can occur. The physical situation will invariably deteriorate during the day. Sometimes it all gets […]
I Wear an Eye Patch Because I have Double Vision
I wear an Eye Patch because I have double vision. Double vision, led to my diagnosis of multiple sclerosis in 1994. Double vision did not become a serious problem for me until about 2012. I had double vision before then but prisms in my glasses were always able to eliminate the problem. The double vision can no […]
Two channel FES
I was fitted with a single channel Functional Electrical Stimulator (FES) in mid December. Sixteen weeks later, at the end of March I was upgraded to a Two Channel FES. The original FES is only able to stimulate one muscle; the new one can stimulate two muscles. The original FES stimulates the muscle to lift the front of the foot. […]
Memory is definitely getting
The Cognitive Rehabilitation for Attention and Memory in people with Multiple Sclerosis (CRAMMS) study will focus on these MS related symptoms and begin to recruit patients in April 2015. I already know that I have a very poor memory. What do I use to help my memory and make my life with multiple sclerosis that little bit easier? The […]
Caffeine is the world’s most widely consumed drug
Caffeine is the world’s most widely consumed drug. It changes brain function and results in alterations in perception, mood or consciousness. Unlike many other psychoactive substances it is legal. If you have MS and an unreliable bladder then caffeine is definitely bad news. I love a cup or two of coffee in the morning but there is a price […]
Lucy Bee Extra Virgin Raw Organic Coconut Oil
Why am I reviewing Lucy Bee Extra Virgin Organic Coconut Oil. It has incredible properties and it is very healthy. It is extremely versatile. Coconut oil is a natural oil that will benefit the body in many ways. Coconut oil is made from the flesh of the coconut. Find out how it is made read this […]
Berkhamsted station is step-free
At long last the lifts at Berkhamsted station are working. It is a step free station.. The lifts were opened to the public on Friday 13 March. It has been an awfully long wait. They started the building work in early 2014 and it was finished by January 2015. People had been seen going up and […]
The inevitable progress
Doing simple things thing seems to leave me feeling exhausted and no physical energy. Hole in my energy tank Why do I leak energy so easily? Any little job leaves me wanting to sit down Not only is it so tiring doing anything remotely active and now it takes me so much longer. I hear […]
The positives from MS
I was going to give this article the title of “What has MS stopped me doing?”. I don’t like that because it is so negative and basically I am a glass half full man so lets make this a positive post. Positive things What good things have happened to me over the last few years? […]
An unwanted visitor
It all started at the back of my throat. It was just a tiny tickle at lunchtime. I honestly thought it was my imagination. It had gone away by the evening, hurray. Next morning, day two, it was a bit tricky to swallow but a couple of cups of tea sorted that one out. I […]
A terrible shock
Last week I discovered that our lovely shower was not working and the problem wasn’t just the shower. Book the engineer The story starts when the thermostat for our power shower broke so the shower water was only freezing cold. I phoned Aqualisa to book an engineer. I pulled the disability card and was told […]
Hydrotherapy and multiple sclerosis
Hydrotherapy, some people call it about physiotherapy in water or even aquatic physiotherapy Power of Gravity When walking around doing the day to day activities we tend to forget about gravity. Gravity is everywhere, its keeping things on the ground. Pour water out of a jug. It is the effect of gravity that makes the […]
Toilet Frame with Adjustable Height and Width
There time may well come when a Toilet Frame with Adjustable Height and Width is very helpful when you need to sit down or get up from the loo. Be as independent as possible. This toilet frame is designed to give you that independence. It will make life just that little bit easier even if you […]
Inactivity kills more than obesity
Be active, it really is good for you even if you are grossly overweight. Obesity Not taking enough exercise is more likely to kill you than obesity BUT obesity in children is linked with an increased risk of MS and other autoimmune diseases such as Crohn’s Disease. Inactivity Believe it or not you do not need to […]
FES, 4 weeks later
I was fitted with a Functional Electric Stimulator (FES) in December 2014. No expectations FES has changed my life but not in ways that I was expecting. Actually I did not really have any expectations. I had not done any research into it; at times I’m so idle. I was only getting one fitted because […]
Breville Hot Cup of Water Dispenser
The Breville cup of hot water dispenser is energy efficient and a safe way to get a cup full of boiling hot water. Absolutely ideal for me because my sense of balance is not good, multiple sclerosis is the culprit. Breville cup of not water dispenser It is very simple to use and it is […]
handSteady Mug
Do you have such a severe tremor that drinking from a normal cup is difficult? If you are unlucky enough to have a tremor in the arms weak wrists or weak hands? If that is the case then a handSteady drinking mug could be the solution. Incidentally it will also help if you have difficulty […]
