Drug trials
Posts on the drugs trials where I have been a participant. These are all double blinded controlled drug trials with a placebo
My sewing skills are tested in the Under and Over trial
Twelve weeks to test my sewing skills. Another one of my MS stories. That old friend MS is now slowly destroying the nerves I use to control the fingers of my left hand. Find out how I discover my sewing skills have deteriorated. My sewing skills There was a time, many years ago when I […]
Under & Over Rehabilitation Trial
This is an opportunity to check out if a daily 30 minute sewing exercise program can help with rehabilitation of arms, fingers and hands. This sounds absolutely ideal for me. Its called the Under & Over Rehabilitation trial. People take it for granted that they can write, use a cork screw or peel an onion. […]
After finishing the MS-SMART drug trial
I was a participant in the MS-SMART drug trial. If you look back over the blogs I wrote while I was on the trial my MS didn’t seem to get worse. A big question comes was after finishing the MS-SMART drug trial. Was I on a placebo, a treatment with no active therapeutic effect, or did the […]
Week 108
As I said in my previous post for week 104 I am finishing the ASCEND trial. 2 October 2014 is my last visit to the clinical research center. Why did I stop I could continue and definitely receive Tysabri (natalizimubab) but the risk of my getting PML is too high for me to continue. This is […]
Week 96
Slowly but surely the weeks trickle by. Only another 12 weeks until the trial finally finishes. That’s another 3 visits to the Royal London Hospital. Even at this stage I don’t know if I’m receiving the real deal or a placebo. It is a random double blind trial. I suspect that I am receiving the […]
Week 84
Its now week 84 of the ASCEND trial, the weeks seems to have have rolled by ever so quickly. I can’t believe I’m nearly at the end. The real thing? Even after week 84 I have no idea whether I’m on a placebo or not. Looking back over the months of the trial my balance […]
ASCEND trial, week 72
Three quarters of the way there On Wednesday 22 Jan I had another infusion for the ASCEND trial, week 72, my 18th infusion of tysabri. Its a 96 week trial, so 24 weeks to go, 6 more infusions. Am I on a placebo? Nobody knows, this is because it is a double blinded trial. […]
48 weeks, half way there
I have been on the ASCEND trial for 48 weeks, half way through, so that’s another 12 more infusions. Could Biogen Idec have a treatment for secondary progressive multiple sclerosis (SPMS)? I have spent the last two days up at the Royal London hospital having tests.Yesterday (Monday) was taken up with assessing my EDSS […]
Oh dear, not again
Oh dear, not again. I lose my reading reading glasses. It was going to be a long day An early start means catching a train at into London at about eight in the morning and arrive back home at about six. As well as the infusion a batch of tests to include various timed walks, […]
