MS articles
Hello, I’m Patrick and I run this website. I have secondary progressive multiple sclerosis, disabled by drop foot and owner of a wonky bladder. Here are interesting articles about MS, not necassarily just about my MS. I want to make people more aware of MS and the effect it has on upon people’s lives. My MS does not affect just me, it has an effect upon everyone I know.
Adapt my MS normal to Covid 19 isolation normal
9 April 2020. Right now the chips are down. I need to find a new life that includes Covid 19 isolation. I must not allow depression or anxiety to intrude or overwhelm life. We all need to come up with a new strategy or routine. I must change my MS normal to Covid 19 isolation. […]
Five day city break in Seville
I’ve never been to Seville before and the idea of a city break in February appealed to me. Of course I had to take usual paraphernalia that a disabled person needs when going away. We had found a hotel in Seville with an accessible room, crucially a walk-in shower. As soon as I had booked […]
Creating my own social capital
Social capital is happening all the time around us. Reading this blog is social capital. Just being with other people gives you social capital. I expect you’ve already gone to Google and typed in those two words, billions of hits. Now I am creating my own social capital. Creating my own social capital I won’t […]
Imagine life without multiple sclerosis
Sometimes I like to play a simple mental game. Picture myself going up a flight of stairs. Maybe I can see myself walking to the shops and then carry the shopping back home. Drive the car instead of using the bus. I can still visualize myself striding out for a walk with the dog, not […]
Who knows where the time goes?
Back in the day I used to get up just after 7, help my wife get the children up, have breakfast and be at work by 9. Nowadays I get up by 8.30 and I’m not downstairs eating breakfast until 9.30. That was all 20 years ago Who knows where the time goes? It’s not […]
Time To Make Your Life Easier
Do you have MS? Don’t you think its time to make your life easier? I should know, I am always trying do it. What can YOU do so you do not feel fatigued living your life? Its important to enjoy yourself and have a good quality of life. Time to make your life easier I’m […]
Can You Cure Multiple Sclerosis
Can you cure multiple sclerosis (MS)? It is a question that would always receive a negative reply. Recent medical developments, described as miraculous, can now lead to a cure for MS. People newly diagnosed with Relapsing Remitting Multiple Sclerosis (RRMS) can have their immune system rebooted using stem cells extracted from their bone marrow. Before […]
Do Hospital Gardens Aid Recovery?
Hospital gardens can help patients with recovery. They will spend less time in hospital. A garden provides access to active exercise and can instill a desire to live My experience in 2009 I was working in Hamburg when I fell over, cracked two ribs and punctured a lung. After the operation to insert a tube to […]
Memory is definitely getting
The Cognitive Rehabilitation for Attention and Memory in people with Multiple Sclerosis (CRAMMS) study will focus on these MS related symptoms and begin to recruit patients in April 2015. I already know that I have a very poor memory. What do I use to help my memory and make my life with multiple sclerosis that little bit easier? The […]
Are You a Frequent Faller? I Am.
Only too often people with SPMS are described as frequent fallers; I am. There are usually only a couple of reasons but you ignore them at your own peril. Drop foot I have a leg that does not do what it is told, sometimes known as drop foot. I’m unable to lift my left […]
Information you need to know
I am going to tell you information that I think is important. One is about your consultant and the other refers to multiple sclerosis and the two are linked. This is information that my consultant Professor Giovannoni talks about in his blog and I feel it is vitally important that other people know this. It’s […]
The symptoms and progression of MS
The symptoms and progression of MS are unique for everyone. It is both a complicated and complex disease. I believe that Relapsing Remitting Multiple Sclerosis and Secondary Progressive Multiple Sclerosis are different diseases. I always thought this was a possibility. RRMS comes and goes, SPMS gradually nibbles away at the central nervous system and the […]
Disabled Toilet Radar Key
I travel up to London via Euston Station quite often, when I get there I often need to go to the loo or else I might get ‘caught short’. A Radar Toilet Key is needed to get into the disabled toilets. It is time get a disabled toilet radar key. Used to go to the public loos […]
Diagnosis, what next?
You have been diagnosed with Relapsing Remitting Multiple Sclerosis (RRMS), this happened to me in 1995. How many of you have been offered a disease modifying therapy (DMT) and when were you diagnosed? You try disguising a fall When I was diagnosed with MS I was not offered any treatment because none was available. I […]
MS Clinics, reducing missed appointments
South Devon Health Care tested a scheme at Newton Abbot Community Hospital for multiple sclerosis patients. Normally the patients would have to attend a clinic at Torbay hospital, approximately 10 miles away. The trial scheme to give people with MS access to services at Newton Abbot Community Hospital has resulted in fewer missed appointments. Specialist […]
Staring Into Space
‘Hey you, stop staring into space’. How many times did the teacher at school say that? Your imagination was away in the clouds and you had switched-off completely. When the moment came you could always switch-on again and be back to a fully functioning person Now you lose the plot Now when you catch yourself […]
Multiple Sclerosis is a Form of Dementia
Professor Giavannoni has put the cat amongst the pigeons by saying that MS is a form of dementia. The definition of dementia is Dementia is a loss of mental ability severe enough to interfere with normal activities of daily living, lasting more than six months, not present since birth, and not associated with a loss […]
Vitamin D3
Vitamin D, its the sunshine vitamin.and has several important functions. Among other things it regulates the amount of calcium and phosphate in your body. These nutrients are needed to give you stronger bones and help to keep your teeth healthy. Click here to buy Vitamin D3, 5000 IU, Softgels Why not read the article Could Vitamin D […]
Selecting a rollator
I have been going to the Chiltern Multiple Sclerosis Centre in Wendover, Bucks since 1997. All the rollators there that people use are Topro Its a fact of life A couple of years ago in 2009 Louise Wakelam, Head of Professional services, suggested that I buy a rollator as a walking aid. I had developed […]
