Living With MS
Life in a MS houeshold
Oh dear, not again
Oh dear, not again. I lose my reading reading glasses. It was going to be a long day An early start means catching a train at into London at about eight in the morning and arrive back home at about six. As well as the infusion a batch of tests to include various timed walks, […]
Bonkers daughter
One of my daughters enjoys a challenge. Its the same attitude that mountaineers have to mountains, they only climb them because they are there. She and a group of friends are going to cycle the length of Britain, Lands End to John O’Groats to raise money for charity. The distance they cycle will be 1000 […]
Emergency visit to Stoke Mandeville
2013 has not been a good year for me so far. This time an emergency trip to Stoke Mandeville hospital in the early hours of Wednesday morning, 20th Feb. So what happened to get me there? On Tuesday evening Barby and I went out for a curry with some friends. Just before we left the […]
Happy Birthday
The website is now one year old, a bit of a roller coaster ride but I think it deserves a Happy Birthday. I can still remember 1 February 2012, I had just been given the website, there was no content, a Facebook page but no followers and something called Twitter with no followers. Overwhelmed, daunted, […]
New Year’s Day
We had a small party at home on New Year’s Eve for 2013. I was woken by the dogs at about 9.30 in the morning on New Year’s day so I stumbled down stairs to let them out for a pee. I was coming back upstairs, took a left turn onto the landing and wallop, […]
Sleepless night
Friday night on 14 December 2012 was yet another sleepless night. I seem to have lost the knack of falling asleep. I managed to doze before finally dropping off at about 5 in the morning. When I woke up at about 9 I did not feel too awful, Barby said ‘stay in bed and get […]
Thoughts on counselling
Here are a few of my thoughts on counselling. How you feel about yourself Remember MS is a progressive disease and counselling does not provide an instant cure. Therapy or counselling can give you a chance to adapt your coping strategy. It is a chance to talk and to change your mind-set. Change how you […]
Bladder problems and MS
Nearly everyone has the misfortune to suffer from bladder problems and MS. Sadly I am one of them. Bladder problems and MS If you do have MS and a good bladder then count yourself very lucky. It is thought that as many as 90% of people with MS will have bladder problems at one time […]
An unreliable bladder
When my bladder suddenly decides to empty itself and I cannot get to the loo, there is severe embarrassment. What causes an unreliable bladder, otherwise known as urinary incontinence, and what can I do to make my life easier? An unreliable bladder I’m not giving a medical solution, This is about how I cope. I’ve […]
Railway stations and access for the disabled
Not enough railway stations provide step free access for the physically disabled. The problem Almost all the British railway system was built before disabled people existed in the public eye. When the stations were originally built lifts did not exist and disabled people were not in the mindset. If you wanted to get across the […]
handSteady Mug
Do you have such a severe tremor that drinking from a normal cup is difficult? If you are unlucky enough to have a tremor in the arms weak wrists or weak hands? If that is the case then a handSteady drinking mug could be the solution. Incidentally it will also help if you have difficulty […]
Vitamin D3
Vitamin D, its the sunshine vitamin.and has several important functions. Among other things it regulates the amount of calcium and phosphate in your body. These nutrients are needed to give you stronger bones and help to keep your teeth healthy. Click here to buy Vitamin D3, 5000 IU, Softgels Why not read the article Could Vitamin D […]
Completing forms properly
I am disabled, I have advanced MS and I cannot work. Completing forms properly is essential if I am to receive any state benefit. PIP (Personal lndependence Payment) and Incapacity Work Benefit are forms for benefits I have had to complete. These forms are a nightmare, lots of difficult questions. They must be answered correctly […]
A big moan
If you are travelling by train from London Euston to Berkhamsted you must go down about 14 steps and then walk down a steep slope to get out of the station. The line runs at roof-top height. A big moan I am disabled and must use my mobility scooter (a Travelscoot) because I cannot walk. […]
The Meerkat Approach
I’m sure you know this is a picture of a meerkat, – it’s that cheeky looking creature that lives in the South African deserts. It stands up on its hind legs and keeps a very careful eye on its surroundings. A group of meerkats is known as a clan or a mob. They are very […]
Selecting a rollator
I have been going to the Chiltern Multiple Sclerosis Centre in Wendover, Bucks since 1997. All the rollators there that people use are Topro Its a fact of life A couple of years ago in 2009 Louise Wakelam, Head of Professional services, suggested that I buy a rollator as a walking aid. I had developed […]
