Living With MS
Life in a MS houeshold
Walking is sensible exercise
Walking is sensible exercise. It is gentle, and it is low impact. Itâs simple and effective. Even better, its free. Sensible exercise is about increasing your general activity and finding things to do that you enjoy. OK, I know that some of you can’t walk, it must be so frustratng. I can’t walk unless I […]
I Need A Two Wheeled Walking Frame
I have come to the conclusion that I need a Two Wheeled Walking Frame. Coming to this conclusion did not make me feel happy. Would a zimmerframe mean that I would be less likely to fall over? Am I a step closer to always needing to use a wheelchair? Is this another tipping point on my journey […]
A Letter to Multiple Sclerosis
A Letter to Multiple Sclerosis You first visited me a long time ago. It was 1972, I was 18 and having a pint or two of beer. I went to the loo for a pee but nothing happened. In 1979 I had a serious bladder spasm and I wet myself at work. You went away […]
I cannot do things I once took for granted
Everyone knows Multiple sclerosis is a horrible disease. Now I cannot do things I once took for granted, its the Multiple Sclerosis. Its taken a long time but I thinks it has finally got me. I get so frustrated. I cannot do things I once took for granted Am I wrong? I donât think so. […]
Tall Ship Boat Sailing Holiday
I recently had a week away on a Tall Ship Boat Sailing Holiday. It was an exciting experience, truly memorable. Organised by the Jubilee Sailing Trust the boat, called the Lord Nelson, is designed and built for people with a physical disability. There were 50 people on board, including the regular crew, varying in age […]
Zinger battery powered lightweight wheelchair
The Zinger battery powered lightweight wheelchair is fun to use. Â Itâs small nippy and a new concept. It can be used both indoors and outside The Zinger is comfortable and itâs manoeuvrable; it can literally turn on a sixpence piece. The armrests on a zinger are optional. The basic model has no handle bar so […]
MS-SMART and Anti-LINGO-1
At long last drugs are being tested to help slow down progression of SPMS. There are two trials in Phase 2 of the testing cycle. There is a good possibility something positive will be the result. The MS-SMART and Anti-LINGO-1 trials represent a real hope for us sufferers of SPMS. Each trial is evaluating how […]
Di Blasi R30 Folding Mobility Scooter
A mobility scooter that folds up on the press of a button. It seems a genuine novelty but the Di Blasi R30 folding mobility scooter is not the only one on the market. Click here to find out more about it. I like the 1930âs style and the large wheels so it can go over […]
Multiple Sclerosis Specialist Advice
I have been following blogs and visiting MS forums recently. Yup these have all been MS related, no surprises there. There was one startling conclusion that I have come to. People seem happy to live with their problems and reluctant to talk to MS specialists. MS sufferers need to find someone who can give Multiple […]
British Summer Time Returns
The last full weekend in March, British Summer Time returns đ . The clocks go forward an hour and everything else takes a great leap forward. Finally its bye-bye to winter, Spring is now well under way. British Summer Time returns In the woods and the garden there are signs that everything is waking up. […]
Look Forward And Not Look Back
Are you a person who will look forward and not look back? Do you try to move forward and take on new challenges? Alternatively are you a person who wants to keep hold of the past and not let go of it? Technology is moving forward very quickly but I am not talking about that. […]
They say they have MS and run a marathon
You say you have MS and run a marathon. I think that is a contradiction. Should someone who runs a long way state they have MS? Do they understand what MS is really like? Itâs the elephant in my room 24/7 it stands over me, watching my every move. This elephant is waiting to catch me […]
Visit The Shoulder Consultant Again
I had an operation to repair the rotator cuff in my left shoulder in August 2014. There is still an occasional twinge in my left shoulder. Â Shortly after the operation, the consultant said he could do a hip replacement in less time than it took to repair my shoulder. Only then did I realise it […]
Something prevents a good sleep
It all started in the middle of last year, 2015, I had an appointment to see a urology consultant. I was having problems with leaking urine before I inserted a catheter to have a pee. Only very very occasionally was there a total disaster. Accidents do happen and very occasionally I have to change my […]
The FES Really Changed My Life
The FES really changed my life. I am quite sure it was the Functional Electrical Stimulator otherwise known as an FES. Originally fitted in December 2014. I immediately stopped falling over with monotonous regularity. Instead I stayed upright, it changed my life for the better . So many people commented that I looked better and […]
Wobble Cushion
I bought a Wobble Cushion in 2012. My balance was much better then than it is now in 2016 multiple sclerosis has killed off my walking and sense of balance.. Nowadays I cannot walk unaided. So what is a wobble cushion? The best description is to imagine a rubber cushion filled with air and it is made […]
Strategy To Take The Pills
I will need a new strategy to take the pills after my second MS Smart visit. Very little happened except that the number of daily pills is now increased from 1 to 2 each day. They have to be taken as near to twelve hours apart as possible. It is the sort of thing that […]
Heads MS Wins or Tails I Lose
Heads MS wins or tails I lose. Its all on the toss of a coin? Life is unfair. Running, driving, dog walking, employment are just a few things my friend MS has won from me. It is exerting such a strong grip on my life. Nowadays I run out of energy more quickly than ever đ […]
Essential Extras For The Topro Troja Rollator
The Topro Troja rollator is a reliable walker if you have difficulty with balance Maybe you find walking difficult or struggle carrying items such as a plate of food. I have used these rollators for several years. Iâm a happy customer. I am going to tell you about some essential extras for the Topro Troja […]
Can You Cure Multiple Sclerosis
Can you cure multiple sclerosis (MS)? It is a question that would always receive a negative reply. Recent medical developments, described as miraculous, can now lead to a cure for MS. People newly diagnosed with Relapsing Remitting Multiple Sclerosis (RRMS) can have their immune system rebooted using stem cells extracted from their bone marrow. Â Before […]
Be a Garlic Crusher With A Rocker
Be a garlic crusher with a rocker though the experts say you should chop garlic. Well try a Joseph Joseph Garlic Rocker thatâs all well and good saying you should chop garlic but they ainât got my problems. No I definitely find it easier to crush garlic with a rocker. Even The Wife says its […]
I started the MS Smart trial
On 7th January 2016 I started the MS-SMART drug trial. 3 drugs are being tested and the hope is that at least one of them will stop neurodegeneration. If you are not too sure what this means then call it shredding of the brain. People with Parkinsonâs and Alzheimerâs suffer from the same problem. Three […]
The Highwayman in Berkhamsted
The Highwayman in Berkhamsted used to be a Blanc Brasserie restaurant, it catered for people who use a wheelchair admirably. There was a good disabled loo at pavement level. The dining area is over half a dozen steps lower than the entrance but there was a lift for wheelchair users to get to the dining […]
MS SMART Trial
I am excited because I have been asked to participate in the MS SMART trial. This is a trial for people with secondary progressive MS. 3 drugs have been selected. They have shown the potential to protect nerves from damage, which could ultimately stop or slow disability progression. For the trial you are allocated at random one […]
Life without a FES would be unthinkable
I have SPMS and seriously disabled with foot drop. I was fitted with a Functional Electrical Stimulator (FES) in December 2014. A consultant from Queens Square, London suggested that it would help my walking. At first I found it very fiddly to setup and this did not inspire me with confidence. Within a few days […]
Swimming is proper exercise
At hydrotherapy I had unexpectedly found myself swimming doggy paddle. Suddenly I realise swimming is proper exercise. There is no fear of falling over. It uses so many muscles. It is healthy exercise and no fear of falling over, call it a water workout. Feeling exhilarated by the thought of swimming a few strokes I […]
Repairing my rotator cuff
Repairing my rotator cuff was my operation in August 2014. Its now December 2015, that was more than 15 months ago. My shoulder now has a full range of movement but no strength when lifting my arm up to the horizontal position. I assumed this would to be my misfortune for the rest of my […]
ASCEND, Whoops We Got It Wrong Again
ASCEND drugs trial of Tysabri or Natalizumab was seen by many people as the drug to stop SPMS progression. It was a  disappointment. I was on the ASCEND trial for two years and finished in October 2014. A year later Biogen, the manufacturers of the drug announced ‘Natalizumab … did not meet its primary and […]
Were There Any Benefits Doing The MS Mile?
 Were the any benefits walking the MS mile? Definitely! On the 9th September I walked the MS mile. Definitely YES đ I raised just over ÂŁ 1,700 for the Chilterns MS Therapy Centre I proved to myself I could walk three quarters of a mile even with a rollator :-)) Taking exercise on a regular basis, […]
Game Using Only Dice And No Board
Think of a game using only dice and no board, they are few and far between. Here is a game using only dice and no board. It is a classic South American variation of liar dice. Its called Perudo. An exciting dice game of skill and luck. This is a game of bluff Knowing the odds certainly helps. […]
Long handled Leaf Collector
Use the Long Handled Lead Collector to keep the lawn and patio clear of fallen leaves and you will not even need to bend over. The two large plastic grabbers It makes collecting fallen leaves, cut grass and other garden debris easy. The design of the two large flat scoops makes the removal of garden rubbish so […]
One Way Flextendable Drinking Straws
One Way Flextendable Drinking Straws This is a pack of 15 flexible drinking straws, they can be made longer and have a one-way valve. One Way Flextendable Drinking Straws These long flexible drinking straws have one big advantage, the liquid stays in the straw when you stop sucking. There is a valve in the base which […]
High Vision Reading Light for the Desk
The Desktop Reading Light is a high vision reading light, ideal for the desktop. The flicker free bulbs create a near daylight effect. This means it makes reading easier especially if your sight is not perfect or you are visually impaired. The strong glare-free clear light allows you to read and concentrate for longer. If […]
Bananagrams Game
Bananagrams game is a fast and fun word game that is easy to play. No need for a board, pencil or paper just a small flat space big enough to build up a cross word of the letters. Ideally Bananagrams game is for two people but more can play. It is an immensely enjoyable game of words. Educational […]
Now Its My Turn To Walk the MS Mile
After several weeks of training the big day arrived. 12 September, now itâs my turn to walk the MS Mile. Getting there My training was walking 100 yard lengths with my Rollator. I felt huge benefits from the exercise, I feel more positive and my balance is now so much better. I am now walking distances […]
PURElite 3 in 1 Magnifying Lamp
PURElite 3 in 1 Magnifying Lamp can be used as a floor lamp, a table lamp or a clip-on lamp. Â The bulbs of the multipurpose lamp create a near daylight effect. This makes them excellent for reading and as a study light. It offers natural light as well as magnification. And best of all, long […]
