Videos etc
Expert by Experience
I have never liked the term ‘Service User’. Would I rather be called a ‘Client’ or a ‘Patient’? No I don’t like them either. I think the term ‘Co Worker’ is okay but not perfect. I do like the idea of Expert by Experience. It is a positive description. In the video just below I […]
A Short Video – Me and My SPMS
Below is a short video of me taken recently after a networking meeting. To watch the video click on the picture I know full well that after a diagnosis of MS you may well feel shell shocked, devastated, depressed or even as if the world around you has collapsed. Despite the diagnosis MS […]
Mobility challenges
MS is not a good disease and many sufferers have difficulty getting around. Shall we call these mobility challenges? We are all different Each MS sufferer has a unique set of problems the usual culprits are walking, mobility and balance. There are plenty more problems in case you were wondering. Here are some of my […]
Reunited With My Scooter
Man is reunited with his lifeline scooter A father has credited the power of social media with helping to reunite him with his ‘lifeline’ mobility scooter after it was was snatched by thieves. Patrick Burke’s three-wheeled scooter vanished from outside Berkhamsted’s Quaker House last Tuesday evening (9 June 2015) – but thanks to his daughter […]
Introduction
This video is an introduction to me and MS. It explains who I am and what I suffer from. Yes we all know its multiple sclerosis but how many of you knew the effect it has upon your life, friends and family. I want more people to understand the effects of this disease. What information […]
Beginnings
It started with double vision and that led to my diagnosis of multiple sclerosis in 1995 but it had no impact on me or my family. I discovered that I had relapsing remitting MS and this morphed into secondary progressive MS in 1999/2000. The progression of the disease was very slow. bit by bit it […]
The glass is half full
I always try to see the glass as half full rather than half empty. I’m an optimist, go out and get things done. Not one of those people who sit back and let other people do things for me. Retaining this attitude with MS is even harder, I am disabled. Setting up aid4disabled has not […]
Video Dragon’s Den, after the pitch
A video was made of the Dragon’s Den contestants after we had made our pitch. Yes I was a bit nervous Click here to see the video. Its only a couple of minutes long and I only get about 10 seconds. See if you can spot me? Dacorum Council invested money into website Yes I […]
