My long journey with multiple sclerosis
1972 was the start of a very long journey
This is the story of 45 years of my life living with multiple sclerosis as we both grew up. I did not piece the whole story together until I took medical retirement in 2012. My long journey with multiple sclerosis.
My long journey with multiple sclerosis
It all started in 1972 and I was almost 18. On a hot summer’s day I went out for a drink with a couple of friends. After a pint I was desperate for the loo. I rushed into the gents but I could not have a pee. Was this the start of my long journey with multiple sclerosis?
I completely forgot about this event until a few years ago. Nothing like this happened again for 7 years but then it was very different.
I am now 25
Working in the antique silver department of the auctioneers Christies South Ken., I was an auctioneer’s clerk and sat up on the rostrum next to the auctioneer. Apart from trying to look important I made up the bills as the auction progressed. Remember this was still in the age of pen and paper.
It was half way through a silver auction and suddenly I was absolutely bursting to go to the loo.
Oh my God what should I do? This had never happened to me before.
Do I try to hold on or leave and go to the loo? I could not stop the auction.
Then the lock gates opened, wooosh and my bladder emptied itself.
I was totally mortified. Even now 38 years later I can still remember that feeling of inevitability. It was going to happen, I was helpless, I had no control over my bladder whatsoever.
What did I do about this incident?
I put the problem down to stress plus I had just had a very bad cold, at least that is what I reckoned. I was living with my future wife and I think she was just as non-plussed as me. The problem disappeared and life carried on as normal. Young men like me will do anything to avoid going to the doctor.
Smaller relapses
A few years later occasionally I had sudden urges to go to the loo but nothing else significant MS-wise happened to me. Looking back I realise this is my undiagnosed MS popping out to say “Hello”. Incidentally I am reasonably certain it would not have been recognised in the 1980s.
I was 40
I got double vision when driving in 1994, a bit frightening. The next day I saw my GP and 6 months later a neurologist said I had MS; I had never heard of it then. The consultant then said “OK Mr Burke, I will see you again 6 months’ time”. There was no advice, help or backup. It was as brutal and brief as that. I soon found a new consultant.
Six years later in 2000 my MS morphed into secondary progressive. No remission, instead everything very slowly gets worse and worse. MS introduced me to his groupies one by one
Now I’m 58
Medical retired in 2012. From the ashes of retirement I created this website. It helps me to live with the disease and it releases my inner creativity. Who says you are too old to learn new skills?
Associated Links
My MS Clock has gone back a couple of years
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Disabled access is not a tick box exercise
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February 2019
After my Multiple Sclerosis diagnosis 2 years ago, i stopped all the Multiple sclerosis medicines prescribed due to severe side effects and decided look into alternative approach. My primary care provider introduced me to MS-4 Protocol from uinehealth centre. co m and i immediately started on their Multiple Sclerosis treatment, this MS-4 treatment has made a tremendous difference for me. My symptoms including muscle weakness, fatigue, mood swings, numbness, double vision and urinary retention all disappeared after the 4 months treatment!
Hello Stella,
I’ve never heard of MS-4 protocol or Uine Health Centre, I live in England. Google said this
The “MS-4 protocol” and “Uine Health Centre” are mentioned in the context of a potential treatment for Multiple Sclerosis (MS), with some individuals reporting positive experiences after receiving the MS-4 formula from Uine Health Centre.
Here’s a more detailed breakdown:
What is MS-4?
The MS-4 protocol, or formula, is presented as an alternative treatment option for individuals with MS, particularly by those who have had negative experiences with conventional medications.
Uine Health Centre:
This is the name of a health center where some people have received the MS-4 treatment.
Experiences with MS-4:
Some individuals who have received the MS-4 formula have reported positive outcomes, such as a reduction in symptoms like numbness and muscle spasms, and an improvement in their ability to walk without assistance.
Important Note:
It’s crucial to note that while some individuals have had positive experiences with the MS-4 protocol, it’s essential to consult with a qualified healthcare professional or neurologist before making any decisions about treatment options for MS.
Conventional MS Treatments:
Conventional MS treatments include corticosteroids to reduce nerve inflammation, plasma exchange, and other medications.
MS Diagnosis:
To diagnose MS, a physician needs to find evidence of damage in at least two separate areas of the central nervous system.
MS Symptoms:
MS symptoms can vary greatly from person to person and may include fatigue, numbness, muscle weakness, vision problems, and balance issues.
MS Causes:
The cause of MS is unknown, but it’s considered an immune-mediated disease where the body’s immune system attacks the myelin sheath, which protects nerve fibers in the brain and spinal cord.
I assume MS-4 protocol is a non medical intervention
Talk soon