MS
Paristeen is another morning routine
Peristeen is another morning routine. This was not a random decision, Peristeen is vital for bowel management and it is now an essential part of my life. I do have a good healthy relationship with my MS but living with it can be tricky and life never stays still. If you have never heard of […]
I forget what I was going to tell you
I’ve had too many ideas on blogs to write over the last few months. Some frustrations, some positive experiences and even some actual thoughts. But when I start to write a blog there is a crisis that needs my full attention then I forget what I was going to tell you. I’m ten Recently this […]
My MS journey begins, 24 years before diagnosis
Some events are very significant, and the emotional impact is unforgettable. Think of marriage, death of a spouse or parent. I will never forget that moment in 1996 when the consultant uttered the words “You have multiple sclerosis”. Many years later I realised my MS journey started 24 years before my diagnosis. My MS journey […]
My sewing skills are tested in the Under and Over trial
Twelve weeks to test my sewing skills. Another one of my MS stories. That old friend MS is now slowly destroying the nerves I use to control the fingers of my left hand. Find out how I discover my sewing skills have deteriorated. My sewing skills There was a time, many years ago when I […]
The urgent search for hope by Patrick Burke
I always enjoy unexpected surprises. One started in early November. I was having my 18-month check-up for the MS-Stat2 drug trial with simvastatin. It’s always a pleasure going down to the MS centre at Queens Square, the staff are really friendly. Also there is an urgent search for hope for people with MS. The end […]
My last ten years with multiple sclerosis
In the last last ten years I have changed from a man in full-time employment to a man with very visible, full-on, multiple sclerosis. Until 2011 my multiple sclerosis was affecting me physically but my thinking and problem-solving skills were still good. Employment was always somewhere in Europe as a contract computer analyst programmer or […]
Ways to Help Cope with an MS Diagnosis
A guest post from Dizzy and the Dinosaurs. You can visit the blog at dinosaursdonkeysandms.com Ways to Help Cope with an MS Diagnosis It was nearly four years ago that I was diagnosed with MS. And for me it was rather a shock. Before I started acquiring my weird collection of symptoms (have buzzy feet, seeing […]
Detected definite changes since last year
It is extraordinary how one year rolls into the next at an ever increasing speed. At a quick glance I am exactly the same as 12 months ago. I’ve still got MS, who saw that one coming! I still ride The Trike and I’m still just as busy. Now scratch beneath the surface. I have […]
Looking on the bright side of life
Everyone who has progressive MS has their own unique set of difficulties. The issues can’t be papered over, they are with you day in, day out, all day and every day. I have one visible problem, mobility or balance and an invisible problem, my bladder. Of course I’m always looking on the bright side of […]
Dragon Dictation Software
Over the last couple of years MS has stolen the dexterity from my fingers. Years ago I tried to teach myself touch typing with no success. My finger tips are numb, thanks MS, so I can’t feel the bar on the keyboard for the letters J and F. I struggled on, typing was horribly erratic […]
MS society walk
On Sunday, 24 September I went to Battersea Park in London to take part in the MS society walk. I left the house at a 8:45, caught the train to Euston and arrived at the start just after 11. I had hoped to be there earlier. Getting to Battersea Park from Euston station by public […]
Going away for a short break
Going away for a short break used to be so easy. The hardest part was deciding where to go. The wife and I would finally agree on a place. From then on it was a simple process. Throw a few clothes into a suitcase, grab a book, car keys, wallet and the cheque book and […]
Going back to Pilates
I have missed my last four Pilates’ sessions. They are on a Friday morning but I have been away. Going back to Pilates was a bit like going back to school after the Easter or Christmas break. Going back to Pilates Don’t get me wrong I enjoy Pilates. It helps me with the biggest problems […]
Hyperbaric Oxygen Therapy
What is hyperbaric oxygen (HBO) therapy? It is treatment when a patient breathes in pure oxygen while under increased air pressure. This increases the oxygen content in the blood and consequently in different body tissues. Medical conditions such as burns, decompression sickness or the bends, severe infections, radiation-induced tissue injury, and carbon monoxide poisoning can use […]
Multiple Sclerosis Therapy Centres
What is so special? There are about 50 centres in the UK that provide specialist treatment for multiple sclerosis sufferers. They are independent of the NHS although they do work closely together. Multiple sclerosis therapy centres offer many different treatments such as physiotherapy, yoga, massage, aromatherapy, speech therapy as well as advice on various topics. […]
It’s not your MS, it’s ours
Alastair Hignell is a patron of the Multiple Sclerosis Resource Centre (MSRC). For further information about him please refer to Wiki Alastair_Hignell Below is his article. ‘It’s not your MS, it’s ours’ The best thing anybody’s ever said to me, bar none. The speaker was my wife Jeannie, seconds after I had broken the news […]
