Progressive MS
Methods I use to manage my multiple sclerosis
Multiple sclerosis is a very unpredictable disease and tough to live with. I think we all know that; I certainly do. MS has now been a part of my life since 1972 but I was not diagnosed until 1995. Here some methods I use to manage my advanced multiple sclerosis. Everyone has their own way […]
Invisible disabilities are the hardest
Multiple sclerosis comes in all sorts of packages. There is no ‘one size fits all’. When I read the newspaper I look very healthy. As soon as I stand up everyone can see I’m seriously disabled. This is the flip side of MS, the invisible disabilities are the hardest to understand. Few would realise the […]
MS Society introduces the 1 Km walk
Sport is an area of society in which ableism is seen only too often. Finally the society is embracing people with progressive MS and mobility issues in a positive way. Eventually the MS Society introduces the 1 Km walk It is only within the last ten to fifteen years that Western society recognises athletes with […]
After finishing the MS-SMART drug trial
I was a participant in the MS-SMART drug trial. If you look back over the blogs I wrote while I was on the trial my MS didn’t seem to get worse. A big question comes was after finishing the MS-SMART drug trial. Was I on a placebo, a treatment with no active therapeutic effect, or did the […]
Progressive multiple sclerosis treatment
Options for progressive multiple sclerosis treatment are non-existent. If you have recently been diagnosed with MS then there are treatments available to reduce and even stop progression. That is fantastic news but it is too late for so many people. I am one of those people If you have progressive MS then the outlook is […]
Who knows where the time goes?
Back in the day I used to get up just after 7, help my wife get the children up, have breakfast and be at work by 9. Nowadays I get up by 8.30 and I’m not downstairs eating breakfast until 9.30. That was all 20 years ago Who knows where the time goes? It’s not […]
How to have a happy Christmas dinner
The problem is how to have a happy Christmas dinner. I’m the one who needs to take things gently,. Pogressive MS, this dreadful disease makes me clumsy and inept. I can easily fall over or lose my balance so it is vital that I spread the work over the day. That’s the theory, if only […]
